Researchers Want Cancer Patients To Share Their Medical Information In Search of Cures

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April Doyle, a single mom from Visalia, Cal., only lets herself look three months into her future. Since she was first diagnosed with breast cancer in 2014, she’s tried a new treatment every three months to keep the cancer from spreading from her breast tissue to other parts of her body. But it returned: this time in her bone. She is almost out of options for her hard-to-treat cancer, but she finds comfort in online support groups where other women with metastatic breast cancer share their experiences. “Eventually we know we will exhaust all of our options until they keep coming up with more treatments,” she says. “It’s a scary thing.”

Now, people with cancer can do more than just wait. A new non-profit project from several leading health organizations that launched Thursday, called Count Me In, lets cancer patients send their medical information directly to researchers who are searching for cures.
Count Me In allows cancer patients to send their medical information — including blood, saliva and tumor samples — to a public database that any researcher can access. The tumor samples and blood samples are genetically sequenced, and that data, along with the patient’s medical history (including which treatments patients received and how well they worked), is then translated into an anonymous database. This information is invaluable to scientists who can use it to see patterns that might eventually lead to new understanding of…

Source: TIME: HealthCategory: Consumer Health News Authors: Tags: Uncategorized Cancer healthytime Source Type: news

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Conclusion: Endoscopists at our institutions met/exceeded the quality metrics in the first half of each year from the beginning of the study. Routine reporting may maintain, but not improve, outcomes. Long-term studies to determine if periodic feedback to endoscopists improves the quality of endoscopy as per national standards for detection of early colorectal cancers are required.
PMID: 31428145 [PubMed]

No abstract available

Source: Cancer NursingCategory: Nursing Tags: DEPARTMENTS: Guest Editorial Source Type: research

Conclusions
Cancer coordinators encounter cognitive, practical, and relational topics that impact their system-focused activities. Adopting a salutogenic focus can help CCs mobilize resources needed to turn challenges into facilitators for system-level work.
Implications for Practice
Cancer care coordination cannot be undertaken by CCs alone. Cancer coordinators’ embedding in multidisciplinary teams, common systems for care provision, meaningful work relations, and professionals’ commitment to cancer care represent important facilitators for CCs’ system-focused tasks.

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Conclusion
Results provide insights into modifiable risk factors for morning fatigue. These risk factors can be used to develop more targeted interventions.
Implications for Practice
Patients in the high and very high morning fatigue classes experienced high symptom and comorbidity burdens and significant decrements in functional status. Using this information, clinicians can identify patients who are at an increased risk for higher levels of morning fatigue and prescribe interventions to improve this devastating symptom.

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Conclusion
Medication administration is an activity of great responsibility for nursing; however, in order to achieve a decrease in medication errors, prevention strategies are necessary for the whole health team.
Implications for Practice
Practice improvements are needed including establishing institutional drug administration protocols and keeping them updated, using a computerized prescription system, and promoting patient safety with staff.

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Background
Gynecologic cancer can create hopelessness and death anxiety and alter the lifestyle of the affected women and their caregivers. Perceived social support may facilitate coping with this illness.
Objective
The aim of this study was to determine whether hospitalized patients with gynecologic cancer and their caregivers differ in feelings of hopelessness and death anxiety and how those conditions may be related to their social support.
Methods
Two hundred patients with gynecologic cancer and their 200 caregivers from 1 university hospital were enrolled in this descriptive correlational study. Study measures…

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Background
Cancer patients often have other noncancer medical conditions. Presence of comorbidities negatively affects cancer survival.
Objective
The aim of this study was to investigate comorbidity, risk factors for comorbidity, and how comorbidity was associated with symptoms and quality of life in patients being treated for breast cancer.
Methods
One hundred and one breast cancer chemotherapy outpatients completed this study. Comorbid conditions, weight, height, and smoking status were identified by chart review. Symptoms and quality of life were self-reported using psychometrically sound instruments. Log-linear…

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Background
Depressive symptoms are prevalent in patients with cancer and are heterogeneous; however, existing methods of grouping patients with heterogeneous symptoms have limitations.
Objectives
The purpose of this study was to identify depressive symptom clusters in patients with cancer using a data-driven method and to explore their relationships with symptoms of anxiety and posttraumatic stress disorder.
Methods
Data from 247 patients were analyzed in this cross-sectional study. Latent class analysis was used to identify depressive symptom clusters, using 9 depressive symptoms from the Patient Health Questionna…

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Conclusions
The CBT-E protocol tested among this highly selected sample was fairly well received and suggested positive outcomes in some patients, particularly those with an insomnia complaint alone.
Implications
Efforts should be pursued to adapt CBT-E and develop other nonpharmacological interventions, in order to provide an alternative to pharmacotherapy for sleep-wake difficulties in this population.

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research

Conclusion
Improvement of QOL of patients with head and neck cancer is a long process, which is associated with the clinical and demographic characteristics of patients.
Implications for Practice
Focusing nursing practice on shoulder and neck function rehabilitation, incision care, and pain management could positively affect QOL among patients with head and neck cancer treated by surgery.

Source: Cancer NursingCategory: Nursing Tags: ARTICLES Source Type: research



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