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Rare Diseases & Conditions

Living with a Rare Diseases & Conditions can impact the daily lives of patients and families. News, articles, topics, discussion groups, … can help patients and families navigate various aspects of life with a Rare diseases or diseases.

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In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was created by Congress in the Orphan Drug Act of 1983. Rare diseases became known as orphan diseases because drug companies were not interested in adopting them to develop treatments. The Orphan Drug Act created financial incentives to encourage companies to develop new drugs for rare diseases. The rare disease definition was needed to establish which conditions would qualify for the new incentive programs.

Other countries have their own official definitions of a rare disease. In the European Union, a disease is defined as rare when it affects fewer than 1 in 2,000 people.

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