Individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions. A wide range of different rare conditions has resulted in a myriad of studies investigating the specificities of the diagnosis in focus. The shared psychological experiences of individuals with a rare condition, however, have not been reviewed systematically.
Living with a Diseases & Conditions, or even a common illness can impact the daily lives of patients and families. News, articles, topics, discussion groups, … can help patients and families navigate various aspects of life with a Diseases.